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Project A.L.S. was founded in 1998, as a non-profit 501(c)3, when Jenifer Estess, a 35-year-old New York theater and film producer, was diagnosed with ALS. Told at the time of diagnosis to “max out her credit cards and eat junk food,” Jenifer instead committed her efforts to making a difference for people with ALS—and producing treatments and a cure. Historically, ALS research was conducted by committed ALS researchers working separately on various aspects of the disease. Project A.L.S. changed that approach dramatically by requiring that researchers and doctors from many disciplines work together, share data openly, and meet shared research milestones.
Our mission at Green World Health Network is to improve health and at the same time create a more sustainable planet. We believe that our future as a people and planet depends on identifying and strengthening the connections between health, quality of life, and the environment. We work towards this goal by implementing innovative projects which utilize green technologies and practices to improve health and quality of life in under-resourced communities in the US and throughout the world.
The Boomer Esiason Foundation is a dynamic partnership of leaders in the medical and business communities joining with a committed core of volunteers to heighten awareness, education and quality of life for those affected by cystic fibrosis, while providing financial support to research aimed at finding a cure.
Strengthening children, youth and families in crisis by providing a broad array of counseling and support services in a safe and nurturing environment
The mission of Hinds Hospice is to uphold the dignity and ease the suffering of the terminally ill while supporting their loved ones, and those who are grieving.
From the website: "The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at treatment and, ultimately, a cure for scleroderma."
To educate, support and promote the dealing of patients with terminal illness.
Hunter’s Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses. Accordingly, our mission is four-fold: • To broaden public awareness of Krabbe Disease & other Leukodystrophies thus increasing the probability of early detection &treatment.• To gather and provide current, functional information and service linkages to families of children with Leukodystrophies.• To fund research efforts that will identify new treatments, therapies and ultimately, a cure for Krabbe Disease and other Leukodystrophies.• To establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial and emotional support of family members and those afflicted with Leukodystrophies.Among the essential goals, founders Jim and Jill Kelly, seek to inspire an appreciation of all children and express a thankful heart towards God for these precious gifts of life. These bedrock values are categorically and vigilantly expressed throughout all of the Foundation's programs and activities.Hunter's Hope is a not-for-profit with tax-exempt 501c(3) status and is registered as a charitable organization in New York State
The Center for Advancing Health works to increase people's engagement in their health care. We listen to patient perspectives. We translate what we learn into resources that help all of us participate fully in our health care and that enable policy makers and clinicians to support our efforts.
The Cystinosis Research Foundation is dedicated to finding better treatments to improve the quality of life for those with cystinosis and to ultimately find a cure for this devastating disease.CRF is committed to finding a cure through an aggressively funded research agenda. CRF issues research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new cutting-edge research ideas. We are focused and determined to improve the quality of life for our patients and to find better treatments, including a cure, for our adults and children living with cystinosis
The Discovery Eye Foundation supports research, education and advocacy related to sight-threatening eye diseases and their treatments, improving the quality of life for patients and their families.
The American Tinnitus Association exists to cure tinnitus through the development of resources that advance tinnitus research.