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The Cornelia de Lange Syndrome (CDLS) foundation is a family support organization which exists to ensure early and accurate diagnosis of CDLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CDLS and others with similar characteristics make informed decisions throughout their lives. Reaching out, providing help and giving hope.
Myasthenia Gravis Foundation of America (MGFA) is committed to finding a cure for Myasthenia Gravis and closely related disorders, improving treatment options, and providing information and support to people with Myasthenia Gravis through research, education, community programs and advocacy.
As the Drug Discovery Engine for ALS, the ALS Therapy Development Institute (ALS TDI) discovers and invents ALS treatments and partners to advance them into clinical trials. It is the first and largest nonprofit biotech focused 100% on ALS research. ALS TDI incorporates all aspects of drug discovery under one roof to find treatments as quickly as possible. Located in Watertown, MA, ALS TDI employs researchers with over 300 years of combined experience and expertise across all areas of drug discovery. ALS TDI is recognized as an international leader in preclinical and translational ALS research, and partners with pharmaceutical companies and biotechs around the world. Awarded the highest nonprofit rating – four stars – on Charity Navigator, ALS TDI spends 87 cents of every dollar raised on finding effective treatments and cures for ALS.
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Your support makes it possible for us to offer high-quality patient education from top scleroderma experts, facilitate patient support groups and fund promising research.
The Vasculitis Foundation supports and empowers our community through education, awareness and research.
Established in the year 2000, the Preeclampsia Foundation is a 501(c)(3) non-profit organization whose mission is to reduce maternal and infant illness and death due to preeclampsia and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving health care practices.
To respond to the needs of people in New Jersey who are affected by Alzheimer's disease and other dementias, by providing programs and community partnerships that increase awareness and access to services.
Our mission is to find a effective treatments and ultimately a cure for fragile X syndrome, the most common inherited cause of autism. We directly fund research grants and fellowships at top universities around the world. FRAXA was founded in 1994 by three parents of children with fragile X. Fragile X Syndrome is the most common inherited cause of autism and intellectual disabilities. It affects 1 in 4000 boys and 1 in 6000 girls worldwide, and one in 260 women and 1 in 800 men are carriers. Treatments for fragile X are likely to help people affected by related disorders including autism, Alzheimers, and many other brain disorders.
Brain Support Network (BSN) is a non-profit, charitable organization dedicated to three missions: 1) Providing information and support for anyone living with an atypical parkinsonism disorder (Progressive supranuclear palsy, Dementia with Lewy bodies, Multiple System Atrophy or Corticobasal degeneration) anywhere in the world; 2) Providing a support for care partners of those living with an atypical parkinsonism disorder in the San Francisco Bay Area; 3) Enabling families living anywhere in the US to donate the brain of anyone with any neurological condition (or healthy controls) to confirm the diagnosis and to further neurological research into causes, treatment options and cures.
Hospice of Michigan's mission is to ensure quality of life and a comfortable, peaceful death for all patients receiving our care, and provide support for their loved ones. We will serve everyone in our communities who needs and seeks our care and strive to improve the state of end-of-life care.
To improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy.