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The mission is to be the leading community resource for providing patients and families with compassionate physical, emotional and spiritual end of life care with comfort, dignity and respect.
Williams syndrome is a genetic disorder that affects approximately 30,000 people in the United States. The Williams Syndrome Association is the United States' go-to support network and strives to enrich the lives of individuals and families affected by Williams syndrome.
THE OBJECT OF EMPOWER IS TO ENABLE PEOPLE WITH PARKINSON'S DISEASE IN CENTRAL NEW YORK TO LIVE THE FULLEST LIFE POSSIBLE THROUGH PROGRAMS THAT INCREASE THEIR AWARENESS AND PARTICIPATION IN EXERCISE, NUTRITION, MEDICAL SUPPORT AND PSYCHOSOCIAL WELL-BEING.
The foundation builds a global community to support families and individuals affected by FOXP1 syndrome, provides resources and education, and funds and promotes research to better understand the condition and advance potential treatments.
The Kentucky Hemophilia Foundation supports people with hemophilia and related inherited bleeding disorders across Kentucky by providing education, advocacy, and family support services while promoting research toward a cure. Its programs are offered free to participants and are funded by grants, donations, and fundraising events.
NOTRE DAME HEALTH CARE CENTER (NDHCC), ROOTED IN THE HERITAGE OF SAINT JULIE BILLIART AND SPONSORED BY THE SISTERS OF NOTRE DAME DE NAMUR, IS DEDICATED TO THE HEALING MINISTRY PROCLAIMED IN THE GOSPEL AND BY THE CATHOLIC CHURCH.
The Progeria Research Foundation's (PRF) mission is to find treatments and the cure for Progeria and its aging-related disorders, including heart disease. Progeria is a fatal, 'rapid aging' disease that afflicts children, who die of heart disease at an average age of 14 years. PRF was founded in 1999 in response to the complete lack of resources and research on Progeria, and is the only organization in the world solely dedicated to discovering treatments and the cure for this devastating condition.
WHITNEY CENTER'S MISSION, EXCELLENCE IN SENIOR LIVING, IS GROUNDED IN THE PRINCIPAL THAT ALL ELDERS, REGARDLESS OF PHYSICAL OR COGNITIVE LIMITATIONS, HAVE THE RIGHT TO ENGAGE IN LIFE AND SEEK FULFILLMENT. (SEE SCHEDULE O)OUR IDEALS OF SELF-DETERMINATION, LIFELONG LEARNING AND CONTINUAL GROWTH ARE UNBOUNDED BY AGE AND EMBRACED BY A PERSON-CENTERED PHILOSOPHY.
Our mission is to educate the public and medical community about preventing and reversing multiple causes of memory loss, dementia, and Alzheimer’s Disease, and to advocate for new testing and treatment protocols. To accomplish our mission, we use live presentations, social and multimedia outreach, online resources, and a collaborative network of like-minded individuals and organizations to spread the good news.
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders. We are a nonprofit organization, established in 1985 as the Ehlers-Danlos National Foundation by Nancy Hanna Rogowski (1957–1995) Our Vision We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD (Hypermobile Spectrum Disorders) population. Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope. Our Mission Collaborative research bringing together medical professionals from all over the world to work on groundbreaking management and care. Organizing medical and scientific symposiums to examine the latest research and update the diagnostic criteria and guidelines for management and care. Bringing together and uniting our community, providing annual conferences globally to distribute information and create opportunities to interact. Producing reliable up-to-date medical literature though our esteemed medical and scientific board and International Consortium on EDS and Related Disorders. Guiding both patients and medical professionals to the most up to date information, resources, support, and education. Uniting support groups and charities from around the world, providing resources and information where needed. Working with our Affiliates on local issues and projects that affect our communities around the globe. One person fighting is a start, but many together build an army. Giving HOPE to all those whose lives are affected by Ehlers-Danlos syndromes.
Called by God, Our Lady of Peace gently comforts and cares for those most in need near the end of their lives, wherever they call home, regardless of means.
The mission of the Foundation is the maintaining of a six bed hospice inpatient facility The facility has the capacity to provide approximately 1,460 to 2,190 patient days of hospice care annually. Assuming an average stay of 35 days, the facility would have the resources to accommodate 42 to 63 patients per annum at 100 percent of capacity.