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Wherever you are in your journey, we can help. Since 1992, the Joubert Syndrome & Related Disorders Foundation has been helping families all around the world. We are an international network of parents who share knowledge, experience, and emotional support. Join our community today. Together we can do so much. What is Joubert syndrome? Joubert syndrome (JS) is a disorder defined by three primary findings: 1) a specific abnormality in the part of the brain characterized by underdevelopment of the cerebellar vermis and additional brain stem differences giving the appearance of the molar tooth sign (MTS) 2) hypotonia (low muscle tone) 3) developmental delays/intellectual disabilities of varying degrees
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