Pledge to make a difference, together.
$300 raised via 3 donations
Our mission it to find the cure to Hermansky-Pudlak Syndrome. While we are on the journey to find the cure we support research, host conferences in New York and Puerto Rico, provide education to medical providers and to families effected by HPS so that they may have the best quality of life.
The HPS Network is a 501c3 self advocacy not for profit.
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